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Showing posts with label hospital. Show all posts
Showing posts with label hospital. Show all posts

Tuesday, May 3, 2011

an update on Glory.

Ok. I'm ready to write this. 
I have never put off a post with such intention:). 


Also, all hospital pictures are old. 
We're not currently in the hospital, 
we just thought these were a little too sad to post while we were in the hospital:). 


Glor during her first EEG, if you know Glor - you can imagine how easily she ripped every. single. one. of those glued in sensors out upon waking:)
I'm sure you can imagine, but the morning I found Glory seizing was by far the worst hour of my life. My heart breaks for those of you who know what I'm talking about, or for those of you who have experienced far worse. I don't say that lightly. My heart breaks for you. We got a video monitor mostly because I was scared I'd never be able to have another morning quiet time again, always thinking back to that morning. I was just sitting here, drinking coffee, praying and reading and she was in her room, going through something awful physically, convulsing and fever skyrocketing. And I didn't know. And then I found her and it was even more awful. I knew nothing about seizures but I knew they didn't normally last fifteen minutes, thirty minutes, and keep going. The EMT first assured us, it was probably nothing, but as she passed the four seizure mark and kept climbing, there was no more assurance. And then they couldn't get it to stop and oh ya'll. It was awful. 


It was so awful. I wish I could just cry through typing. 
As I write this, I'm just crying my eyes out and Nick is looking at me knowingly and hilariously. Hence, why I put it off so long. 
She is just so special. I know you know if you have any kids, they are all SO SPECIAL. They're all our favorite. They're all like our hearts walking around outside of our bodies. 
So to see the most full of life person I've ever met, completely detached and out of control and lifeless, with no guarantee we'd see her as herself again, was heart-breaking. To hear my husband crying her name and groaning Jesus' name in the next breath, was awful. And even when she woke up, she wasn't our girl. She couldn't talk, couldn't talk, she was belligerent, angry, upset. For days. Some of which the doctors expected, but as it continued and even increased, we could see the look of worry in doctor's and nurses. At one point, they even told us, they needed to see "a new child" in 24 hours or they would assume she'd suffered some other intense brain injury. It was all a little awful. So we started praying. Well, shoot, we were already praying. We started praying a little more vigorously. 


the awake pictures are more sad than the sleeping ones. This was taken 48 hours after seizures, she was still pretty incapable of talking and was consistently hysterical. I'm smiling because she's alive, but terrified she's not coming back.


And that's the part I want to tell you about. 
All in about a span of an hour, the Lord really brought Nick and I to our breaking point of concern. Something was NOT RIGHT. We'd received the news of what was causing her epilepsy, but something was still very wrong. In all honesty, something had been incredibly wrong with her for weeks and we were no longer willing to accept that any of it was normal or ok or just a phase. In that same hour, her wonderful doctor sat us down and concurred - this was not ok. She should be walking and talking by now. She shouldn't be so upset and she  shouldn't be so upset that she is biting IV's out with her teeth. She should be sleeping more than 2 hours in 24. Friends who came to pray agreed and encouraged us to pray, something was not right. My sister, without prompting from me, but only from the Spirit, arranged a group of people to pray through the night. We needed a break through. 


When all the visitors were gone and she had passed out after an hour long fit, we shut the door, asked the nurses for privacy, and went to battle. For our girl, for our family. We repented for the things we'd let creep into our hearts and our family, and we just cried out - in Jesus' name, for protection and healing over our girl, for the Lord to use this situation to bring people directly to Him in salvation, for her to love and long for Him again. To have our girl back. To give us the strength, as parents, to move forward pointing our children to Christ alone, to trust in the gospel alone, to proclaim His name alone as good in this world. We prayed specifically that not only would the Lord make her "a new girl", but that her doctors would acknowledge that and we'd give all glory to God. 


This is where I have a hard time writing about it. Because in that space of time, He really DID NOT HAVE to heal her. He still would've been good, and holy, and loving, and real. I pray that we would've known the bad news of the gospel and the good news of the gospel just as strongly the next day, had she woken up with a deteriorated  condition. But the Lord wrote her story otherwise, and we are of course so thankful He did. She woke up a new girl. She could walk and talk and feed herself. There were no more violent fits, only normal three year old ones. She slept all night and all night every night since then. (sleep has been a big deal with Glor's epilepsy. We're not sure if it's chicken or the egg, but she stopped sleeping a few months ago and it's kind of a weighty connection) At some point, as I was sleeping that night - I woke up and thought, "A) She is STILL sleeping. Praise God. and B) This room is filled with angels guarding and fighting for her, I'm sure of it. I can go back to sleep." The next morning, her doctor even said, "well - she is a new girl". 


sweet lady
Since then, she's had no major seizures. PRAISE GOD. We went home with an appointment for a follow up EEG that happens in the next week or so, some emergency seizure meds, daily meds, and a kind of broad understanding of epilepsy. Since then we've read a lot, we've researched and changed our diet a bit more, I've done a good bit of overreacting and long periods of video monitor watching. She's playing and laughing and sleeping. I worry constantly that she's having small seizures and Nick does his best to reassure me. The doctors have said to try and not worry too much till we see her next test results, that it should hopefully tell us more what epilepsy looks like for her. 


We're of course praying for good news, but we're trying to live from a place that knows the bad news of the gospel is so much worse than the worst news we've ever received. Our sin and need for Christ is so much worse than any medical condition, any injury (emotional or physical) we could incur. And the good news, better than any blessed EEG. That Christ died for us, longs to have a relationship with us, shed His blood for our adoption into the family of God - that we'd be called sons and daughters instead of sinners and slaves. We want our whole family, shoot - everyone we know, and of course Glory, to be able to rejoice in the good news, outside of anything - in spite of anything - because of anything that could happen to her for the rest of her life. 
As easy as that is to say, and as hard as it would be to do. 
That's the prayer. 


The first morning Glory was in the hospital, they had to cut her shirt off while she was seizing and it seemed like such a hilarious sadness that her shirt was cutoff. She'd painstakingly picked it out the night before and it was so sweet, and also my sister had loaned it to us from her kids, and she was there in the hospital when I realized it had been cut. I remember feeling so sorry about that shirt, though I'm sure my sister never thought about it again:). My mom swooped the shirt up, washed it, and saved it for me and gave it to me last week. She knew me well enough to know I probably wasn't ready to see it, so she hid it and told me about it later. I love her a lot for that. 


I brought it home and everytime I see it I'm swelled with these thoughts. 
This jumbled update I'd like to write. 


Glor & the boys tackling the daylights out of me during family fun night. Yep, I'd say she's doing good. 
Glory is doing great. So great. 
Today, she is doing so great. Praise God. 
My sadness, fear, and pain from that morning are really large and in the small bits of time I access them - I'm overwhelmed with the knowledge that the Lord cares more for her than I do, that He hurts over her hurts, 
even when He knows the glory He will get from them. 


And yet, in spite of all the hurts in the world, no matter what comes, 
we have good news in Jesus.
In Christ Alone. 

Also, I'll be the one to break the awkward pause and talk about something light after something deep in a conversation:). Make sure you entered the giveaway yesterday, mkay? You don't want to miss out on it, it's open till Thursday at 5pm.
And, if you want a naptime diaries print for Mother's Day, you have until 5pm TODAY to order.  

Tuesday, April 19, 2011

an open letter

This is my open letter to my friends.
Some thank you notes you have, some are yet to be delivered. 
In all cases, it doesn't matter. A flowery card from Target will never do enough. 


Marilee, thank you for flying from Seattle. For leaving your boys for the first time and rushing here. For sitting on an two awful flights and missing your husband and letting Glory climb all over you when you were sunburnt. Wait. Back up. Thank you to Katie and Mom for rushing to Columbia when I called you from the ambulance two weeks ago. I heard Katie went to the car straight from the bed without thinking to put any clothes on until someone talked sense into her. Thank you for the coffee and the support. You know, not just three weeks ago. Years ago, years ahead. Coffee and support. 


 Thank you to the people who prayed with us and over us in the hospital. Thanks Stacy for sweeping up our boys and letting me sob a little in the ER lobby. Thanks to the Walters too for the amazing help with the boys. 


Oh, thanks to the nurse in the ER who did a little sobbing with me too. 
Best, most helpful unprofessionalism ever. 


Thank you Riverside and Columbia friends for the meals and the groceries that are still coming. For the prayers and the smiling faces in the waiting room. For the cleaning our house and putting fresh flowers in every room. 


Thank you Seattle girls. For your scripture, your prayers, your tears. Your middle of the night praying and profile pictures of Glory on facebook and your love. For sending this sweet advocate who just did my dishes constantly, bought silly things for me that I've needed or wanted, and loved me like only you ladies could have. Here were my favorite parts: Finding a muumuu for $4 and buying it because the lady spoiling me insisted on it. Just like that, on a whim. Getting my nose pierced. Driving 100 miles to the beach and showing her the east coast and knowing it was ok because I had help to get the kids there and back. Showing her my house and hearing that someone else sees the Lord healing my anxiety.  Probably only because she was doing my dishes. You girls, you're too much.
 (promised shopping trip pictures coming soon)


Thank you to our family - near and super far. Also, the friends that are LIKE family. For checking on us and loving us and loving Glory so much. Thank you sweet boys who have worried about your sister and have acted totally normal since returning because, guess what?! it is normal around here, praise God. Thank you husband for being the best dad I know. For praying and crying with me and loving her only as much as you and I possibly could and knowing the Lord loves her so, so, so much more. 


Seriously, internet friends. Thank you. You who I've never done nothing for and you still prayed, prayed, prayed. Wrote about her, tweeted about her, fought for her. I like you all so much and I'm so thankful for you. 


I feel spurred, called, commanded to love well because we've been loved so well. Not just in the last three weeks, but the last three years and the last twenty-whatever too. We don't deserve it, cannot earn it, could never repay it. But we know the Lord better because of it. We want to know the Lord better because of it. We want to be ministers of the gospel to others because of it. We want to be just like you. Just like Him. 
Because you were Him to us. 


Thank you. 
We love you. 
The Connollys. 

Friday, April 8, 2011

anticlimactic

I've never loved an anticlimactic day so much in my whole life. 
So much build up, prayer, emotion, tears, love, worship, and yearning. 
To do what? Wake up, dig in the dirt, take our pet caterpillar for a picnic. 
Eat carrots drenched in hummus and refuse to smile for pictures. 
Make appointments for haircuts for certain 4 year olds. 
Epilepsy? Hospital visit? Brain damage or seizures?
Lord willing, no where near our thoughts today. 
Of course it wasn't really anticlimactic. 
Of course all the yearning, prayer, and love produced a lot of change in the Lord's Kingdom. 
But for today, here are some pictures of some sweet dirty kids having a picnic. 









Happy Weekend Ya'll. 
Love you too much. 

Thursday, April 7, 2011

all our bags are packed...



and I think we're almost ready to go. 
AGH. Relief, excitement, nervousness, relief, gratefulness, joy, praise, nervousness. 
Feeling all those things. 


So much has happened in the past thirty six hours, I can't wait to tell ya'll all about it. So many specific prayers answered/miracles performed, when the time is right - I can't wait to share it all. 




But for now, we're headed home, excited and a little nervous to figure out what Glory's condition looks like at home, in our normal setting, with "those boys" around. Speaking of Elias and Benjamin, I can assure you there will be a cuddle session starting around 7:30pm tonight that might not stop for a loooooong time. 


Please, oh please keep praying for our family. For Glory in the next few days, our reentry to normal family life, rest & wisdom for us as parents, and "those boys" as they adjust to our new normal. You can pray specifically for Glory's seizures as we've been warned it would be totally normal for her to have them frequently in the weeks to come, but of course we're praying for no more, ever. And our biggest prayer is that the Lord would keep restoring her, regenerating her little heart and body to something totally beautiful and new that gives Him "too much" glory, as she would say. "too much" is always a good thing with Gloriana. 




Thank you SO much for all your emails, calls, texts, and messages - especially the ones with info/suggestions/similar stories about epilepsy. We're sorting through them and we're so thankful for the internet and this sweet sort of community that is all new. Please keep them coming and as our sleep returns to normal, I'll keep responding. Love ya'll so much. 


Glory loves you too. 
"too much". 

Wednesday, April 6, 2011

updates & i want to stay here.

Gloriana - with one of "those boys". Cannot wait to see this sweet smile again. 
I know so many of you are praying and seriously, seriously - we are indebted to you. When we hit a wall of discouragement, lack of progress, spiritual warfare, and even some medically backward steps yesterday - my sister set up a team to pray for Glory and us through the night, every hour. I want to hug each one of you, whenever you've prayed, whatever you've prayed for - but I want to tell you some actual miracles that have occurred just since this morning. 


- First of all, Glory slept seven hours straight. Even the night before her major seizure episode, Glory was up through the night - so they longest she'd slept, including sedation was about three hours since last Friday. SEVEN HOURS last night, including sleeping through nurses checking her vitals. This also means WE SLEPT, which is a huge boost to our quality of life.
- Secondly, Glory's mood has greatly improved today. She's still not herself, but her anger and agitation has HUGELY decreased and we're able to calm her much more easily now. She's realizing her "feeling yucky" is just that, and I think it's helping her cope instead of feeling so lost in her own physical/mental confusion. 
- Third, she let us call "those boys". Glory's two favorite people in the whole world are "those boys", her brothers, and they have been quite the sore spot on her heart since she woke up Sunday. Each time she remembered them or someone asked her about them, she became really agitated and violent - mostly because I think she missed them more than she could express and hated the thought of being away from them. This morning, she was able to talk about them without being agitated and even wanted to CALL THEM! I won't recount that conversation for you, since it left her parents a little weepy, but it was really beautiful for us to hear them talking and enjoying one another. 
- FOURTH and most exciting: She's starting to walk. Yesterday our doctor warned us that if we didn't see some major improvement in the walking area in 24 hours, we were going to have to go back to testing and start from square one. Last night, she couldn't stand up on her own and today she walked back and forth to the hospital play room TWICE holding my hand! 


and one more thing that's been running through my mind. 
I want to stay here. 
Not at this hospital, and not in the state of sickness, or brokenness over my baby - but in this absolute dependence on Jesus. I feel desperate for prayer and for people to pray and I don't feel even slightly ashamed to beg people to join me. I feel ok asking for help and receiving help and admitting my incapability to even really care for myself. I feel like my family is this sweet team that is all fighting and battling together, part of this larger army that is going to scare the heck out of our enemy. I want to stay in this place as a mom, not measuring my children by what they cost me or how they behave or what they produce - but by the intense and overwhelming love that their Father has for them. 
I would like to stay here. 


We're so thankful for your prayers, PLEASE keep them coming - for increased miraculous improvement and that we'd start to see our girl again. That she'd feel peace and comfort and joy that could only be heaven-given during this confusing time. We're really praying for a FULL restoration, not just back to how she was before Sunday or six weeks ago when we started see some changes in her, but to a new, healthier Glory that gives God all the glory. Nick and I are literally praying for her to be able to say, 
"I felt yucky and Jesus healed me."
................................................................................................................


And while you're praying, lift up Rachael, Chris, and their three boys as the Lord usher's their twin girls into the world today. I'm claiming the sisters as my "nieces" since Rachael is such a sweet sister in the Lord to me. 

Tuesday, April 5, 2011

hopeful news & prayer requests

This is my fave pic of Glor, ever. Taken a few weeks ago. 
Hey sweet friends, sorry it took me so long to update after sweet Glory's MRI yesterday. We really have been praising the Lord for some answers and at the same time - begging Him for more relief for her. The very condensed version of the news we received yesterday is that because of a minor case of hydrocephalus (fluid-filled enlarged brain ventricle) that Glory had as a baby, there is some scar tissue that is affecting some nerves and causing epilepsy. Besides the massive series of seizures Glory had on Sunday, we also think she may have been having minor seizures that would have been undetectable to us but would have led to some pretty extreme personality changes in her lately. While the hydrocephalus is still totally mild and has no need for treatment, the scar tissue will stay and we'll need to treat Glory's epilepsy from here on out.

So, we're really filled with hope. Even if epilepsy is our new normal - that is very different than some of the other things that could have caused such a severe episode for her. We're just starting the long process about finding out more what the future will look like and how we can care for her best. You better believe this mama's gonna be all over the healthy diet modifications and environmental changes, as well as - of course what ever she might need medically. 

Now, in the present though, we could really still use your prayers and encouragement. She is still having an incredibly rough time recovering from all the trauma her sweet brain went through on Sunday. Lord have mercy, she has all her words back though! You can imagine, if we suspect that her minor seizures were causing erratic behavior in the past few weeks - her major seizures are causing some intense unhappiness with life right now. We're doing all we can to keep her calm and help her rest, but she only slept about 2 hours on Sunday night and 2 hours on Monday night. You can imagine how you'd feel under those conditions alone, much less all the other things our sweet girl went through. 

For me, this has been the roughest part. I'm really longing to just see her back to normal, see her as herself for a glimpse of a minute. Our doctors are really confident that she shouldn't have any sort of brain damage, but I just want to see my sweet Glor for a second. I would pay a million dollars or shave my head or cut off all my toes to see her smile right now. To see her giggle or hear her sing. 

Our plan is to move her out of the ICU and see if that helps her sleep tonight, which will hopefully help her start to return to her sweet self as quickly as possible. She's coming off her really intense seizure medication and starting on what will hopefully be her new normal medication, so we'd love for you to pray for that transition as well. 
*update: She is out of the ICU and in the sweet children's floor. Here she can have toys, we can both sleep in her room, we can actually sit on her bed without getting yelled at, and she won't be interrupted every few minutes with bells and dings. She's also been asleep almost two hours, which is a huge answer to prayer. Quality of life has GREATLY improved, though we're so thankful for the awesome care she received in the PICU. 

Here are some prayers from "praying God's Word" by Beth Moore that I've been praying over her this morning. 
........................................

Reach down from on high, my God and my Redeemer, and take hold of me! Draw me out of deep waters. Rescue me from my powerful enemy, from my foes, who are too strong for me! My enemy has confronted me in the day of my disaster, but You, Lord, are my support! Bring me to a spacious place; rescue me because You delight in me! Psalm 18:16-19
{Gloriana would probably want me to tell you guys - "the foe" of the IV is not actually too strong for her. She's beasted seven of those 
and now the nurses have quit trying to keep one in:).}

Lord, my God, show the wonder of Your great love, You who save by Your right hand those who take refuge in You from their foes. Keep me as the apple of Your eye; hide me in the shadow of Your wings from the wicked who assail me. Psalm 17:7-9

Keep me safe, O God, for in You I take refuge. I say to You, Lord; "You are my Lord; apart from you I have no good thing." Psalm 16:1-2

Though my enemy plots evil against me and devises wicked schemes, he will not succeed if I am walking with You, O God. You will make him turn his back when You aim at him with drawn bow. Be exalted, O Lord, in  Your strength! 
I will sing and praise Your might! Psalm 21:11-13

That last one is my favorite, amen. If you know our Gloriana, you can probably picture her - a sweet warrior princess defeating this enemy who is trying to assail her. I know within days, she'll be singing His praises again. Shoot, she might want to even make a vlog about it.  

Monday, April 4, 2011

waiting & thank you.

just one of the lists I'm making for Gloriana to show her all the people who lifted her up
Lately, I've been telling Glory "patience is waiting with a happy heart". 


Right now we're waiting for Glory to go to her MRI, then we'll wait for her to get done with her MRI, then we'll wait for her to wake up, and then we'll wait to hopefully hear some miraculous news.


 (updated: by the time I finished typing, she was OUT of her MRI - sleeping peacefully)


I'm trying to wait with a happy heart. 
Here are the things I'm praising the Lord for. 
- My sweet girl. Each time I rub my hand on her face, or pat her hand, or see her foot twitch, I'm beyond thankful yesterday wasn't more traumatic, more awful than it was. In honesty, it was more filled with grace than it was awful. I'm so thankful for each sweet day we've had with her, and for each miraculous day He's going to bless us with in the future. 
- I'm praising God for the internet. I love the internet ANYHOW, but I love it fifty times more this week. I'm making lists for Glor of all the people showing her love, emails, texts, phone calls, facebook messages, tweets, etc. I'm more THAN thankful for you and she's going to feel so thankful too when she knows you were all praying for her. How much glory is the Lord getting from all these people calling out to Him? So much. We feel so privileged that it's for our little lady. 
- Benja & Elias being happily away at Camp Nonny/Ruby. I just spoke with them, and they sound as happy as possible. I am so proud of my big boys and I cannot wait to see them again. 
- Lastly, I'm praising God for my husband. Even though, supernaturally I'm somehow not battling worry or anxiety too much, I am a bit of a basket case. Nick stood strong (much stronger than I did) through our rough night last night, he's prayed when I've only been able to cry, and he's led me in delighting in the sweet joy that is our daughter for these past two days. Oh to be loved like Glory is loved like her Daddy. And even more so like her Father. And oh goodness, we are. And now I'm crying again. 


Thanks ya'll for EVERYTHING. 
For the meals, the scripture, the texts & calls, the facebook, the EVERYTHING. 
Thank you. 

Sunday, April 3, 2011

Glory's first day in the picu.

type type type, hand hold. 
text text text, kiss. 
That's the name of the game in the picu right now. 
Texting to check on my boys, thank friends for prayers, type prayers and medical notes and research online.


our bright blue eyes!
An update on the rest of Glor's day: 
Her seizures officially stopped around noon, praise God. She got hooked up to the EEG machine to monitor her brain activity, see any seizures we might not see. Her EEG machine is HIGH TECH. It has a webcam (she is so cyber savvy) that sends a constant visual & audio to her pediatric neurologist and records every little thing she does/says/brain waves. 


He talked through some preliminary test results with us and laid out the plan for the next 24-36 hours. Our main prayers are no more seizures (EVER) but specifically as they wean her off her strong anti-seizure medication. We also, of course, want to see as much positive response as possible as she comes back to real life. As soon as she seems to be seizure free, we'll take her off the EEG and begin the process of figuring out what exactly is causing all this. I'm not trying to be vague with possibilities, but we're not trying to conjecture a single thing until we know more. 


After she calmed down, she was able to have some visitors. Of course, this morning - my Mom and Ruby-Katie (my sweet sister) rushed from Charleston. They'd been with us all morning and everyone was speaking sweet words to her and encouraging us. Her godmama's parents came and prayed over her and us. Friends from our church dropped by and the fabulous Kristin came to keep me company and see the massacre I'd done to her masterpiece by not washing my hair for three days:). Seriously, it doesn't do any justice to say we're thankful for our community here. 


my favorite woman on earth
Our pastor's wife rushed to the ER to get the boys this morning, everyone helped with the boys at church, my sister's in-laws (THANK YOU WALTERS!) kept the boys all day, our Pastor came to visit as well as a few church friends, two friends from church busted into our house and did Lord-knows-what. I'm scared to ask. My mom and sister are taking the boys to Camp-Walters-Hopper-Mt.Pleasant for what will probably be the funnest few days of their lives. We are really overwhelmingly blessed. Everytime I saw a tweet, email, text, facebook, call pop up - I was really actually just smiled in the midst of crazy. Thank you, thank you, thank you, thank you. I feel like I'm still standing because of those prayers. 


Now, the boys. Those boys are good. Elias was present when we found Glor seizing this morning and he was the most calm of all of us, gently prodding her to wake up and reminding us the doctors would help her feel better. I am so thankful for those big boys, those valiant brothers. All I can think about is getting Glor well enough to get her out of the PICU and into a real room where they can visit. Of course we would love for as many people as possible to be drawn into relationship with Jesus through Glory's life, and I'm specifically praying the Lord uses this situation mightily in Elias' life. He loves his sister something fierce and I pray this becomes a good opportunity for him to meet her Healer. 


these two, 2 weeks ago


Ok, back to Glor's day. Kristin was sitting with me and it was getting close to the awful hour of 7pm where they kick even the mama's out for nurse rotation. At about 6:55, we started reading some scripture to Glory and praying for her. Even though they thought she might be out for 24-48 hours, as I read - she started responding and waking up. Locking eyes with me and moving her feet. The nurse knew from the look on my face I couldn't possibly leave, and I was given permission to stay as she woke up. Nick came quickly (he was sending the boys off) and Glor just responded with her whole body at her Daddy's voice. She practically leapt out of bed:). She's been able to say a few words and phrases, "uh-huh" and also "i want milk" and "i want cereal". Sweet thing. She was immediately really agitated and just neurologically beat up, but sweetly - she has just fallen into a deep sleep. Thanks to her EEG machine, we can tell she's getting good deep real sleep, not anti-seizure medication medical coma sleep. 


So tonight, we hope for rest. Tomorrow, we'll see what the Lord has in store for her. 


Some sweet Jesus things I want to tell you about: 
- Our hearts are actually encouraged, which we really attribute to the prayers of the saints. We feel unsure of the days to come and SURE of God's greatness and love for our daughter. 
- We were supposed to be in Charleston this weekend to run the Cooper River Bridge 10k together and signed up too late to run the race. We were bummed and still planned on going, till Elias and I got sick and our weekend seemed too busy. If we'd been there, this would have been so much more complicated AND we wouldn't be in Columbia, where there is one of the best pediatric neurologists around. There is no pediatric neurologist in Charleston. Our doctor is literally watching Glory on her webcam from HOME to check on her. Praise God. 
- Glor was really uncomfortable and upset after waking up tonight. Our nurses warned us she would be like that all night and probably tomorrow too. I quickly tweeted/facebook asking for prayer for comfort and rest for her, and she fell asleep a few minutes later. 


All little gifts of grace from Him. 
We're beyond overwhelmed for what He's giving us. 
What He's given us. Tonight I'm praying psalm 100 & psalm 139 over Glory. 
I'd love for you to join me.